Written question – Supporting the development and standardisation of dementia registries across the EU – E-001733/2025

Question for written answer  E-001733/2025
to the Commission
Rule 144
Hilde Vautmans (Renew)

The use and operation of patient registries for people living with dementia vary considerably across Member States – some have detailed registries of people diagnosed with the condition and others have little aggregated data on people living with the condition.

Such registries can be vital in planning and providing care and support services for people living with dementia and serve as a tool for determining effective public health interventions, including across primary, secondary and tertiary prevention.

Given this disparity and the opportunity for added value by the EU’s health and digital programmes:

• 1.What work is the Commission undertaking to use programmes such as EU4Health, or other relevant funding streams, to support Member States in developing their own national dementia registries?
• 2.Furthermore, does the Commission envisage developing resources and dedicated support for initiatives, similar to what it supports through the European Network of Cancer Registries[1], to support the standardisation and interoperability of dementia registries between Member States?
• 3.At European level, does the Commission intend to develop an equivalent to the ‘European Cancer Inequalities Registry’[2] for dementia?

Submitted: 30.4.2025

• [1] https://www.encr.eu/.
• [2] https://cancer-inequalities.jrc.ec.europa.eu/.